newborn limbal dermoids/goldenhar syndrome

As I've mentioned before, Grant was born with two limbal dermoids-one on each eye, on the bottom part of each iris. Unless he is looking upwards, they really aren't noticeable as they are hidden by his bottom eyelid. What I haven't mentioned on here is that I found another "something" in the corner of one of his eyes when he was around 5 weeks old (do you see my concern as to why I took the Chapel Hill appointment instead of the local appointment!?) The "something" in the corner of his eye is a limbal lipoma.   

I don't have great pictures of either as they are concealed by his eyelids, but here is an idea of what is going on:

The dermoids are actually much larger and more "raised" then the picture conveys. The lipoma is hard to see because it simply looks like the corner of his eye, but there is a flap of tissue there that is definitely not suppose to be there.

We had Grant's ophthalmology appointment today, and after a full examination, it was determined that Grant's eyes are p.e.r.f.e.c.t! With Goldenhar Syndrome, it is common to have poor eyesight, blindness, or a whole slew of eye problems. His eye sight is great, they can focus perfectly, the muscles are strong, and the anatomy is as it is suppose to be! 

As for the dermoids and lipoma, the Dr. has suggested that we simply leave them as they are. Surgery is very dangerous and can ruin his eyes...so to fix something for the sake of vanity could make him have extremely poor vision, a drooped eyelid or eye, and/or simply ruin his eyes. Now, if they (the dermoids) become larger or grow hair (yes, they can actually grow hair!) then parts of it will have to be removed.

Unless something comes up, we are eye doctor free until his first birthday! 

I know this is just the beginning of a very long process dealing with Goldenhar, but tonight we are praising God and His sovereignty.