Limbal Dermoids & Astigmatism-11 months

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Today we had Grant's ophthalmology appointment for another full examination. We have been (and will continue to) have these appointments every 3 months to monitor his eyes. He was born with Limbal Dermoids (also called Epibulbar dermoids) on each of his eyes, as well as a lipodermoid in the corner of one of his eyes. They are there due to him having the craniofacial disorder, Goldenhar Syndrome. The dermoids on his eyes have caused the shape of his eyeball to form a "football" shape-making him have an astigmatism. Grant specifically has an irregular astigmatism. Since birth, the astigmatism has progressively gotten worse.

SO- the latest on his eyes...His astigmatism has gotten significantly worse since his last appointment (at 8 months old). At this point, there is nothing more his ophthalmologist can do (other then monitor), and he has referred us to a Cornea Specialist, who will more then likely recommend surgery to either (a) remove the dermoids or (b) "shave" the dermoids down. Glasses are not an option right now, because they cannot stop the process of his eyes getting worse. Although Grant can see, his vision is very blurry.  

Right now-we are simply in a waiting game. His appointment with the specialist is a few months away, but even so, his doctor thinks acting now would significantly help Grant see, rather then waiting until he is older.

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So this is where we are now. Days like today are so emotionally draining. We have to do this again next week with Harp's appointment with radiology & his surgeon. We cling to hope and God's promises..because some days, that's all we have.

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UPDATE: The Cornea Specialist believes Grant has a regular astigmatism, and recommended glasses. Grant has been wearing glasses now since June 2013, and we still monitor his eyes very closely. In December 2013, we were suppose to have a full examination with his ophthalmologist, however, Grant was being less then cooperative, so it has been rescheduled for March 2014. We'll know more then!